I see this a lot. Loss parents in so much pain that they lash out. I’m guilty of feeling it myself. When someone posts about losing a grandparent I admit to feeling like that’s just the natural order. That may be but it’s still a loss and it’s still painful. A child losing its life will always be so so traumatic and wrong but it doesn’t make it a more valid loss. By stacking up reasons and proof that your pain deserves more validity you ignore that pain.
I remember when I was early into this, I was so angry all the time. I would see people with babies and hate them. Every other loss would grate me as it took away from Jack, or so I felt. Sympathetic and often pitting looks infuriated me. But again anger is a distraction technique. To move forward and get to where I am now I had to see what was really going on, break through those walls, heal my heart.
It’s not easy. It’s taking intense CBT (cognitive behavioural therapy) and a lots of safe place visualisation techniques and grounding. Trauma manifests in many ways, one is anger, another is distracting from the issue. It’s hard, it’s painful to have to deal with loss, but take it from me, it does get easier if you do. Getting help is the key, you don’t have to struggle alone.
I’m never going to forget Jack, how could I? But his memory now makes me proud and happy, it is always sad too but that’s ok, that’s normal. I no longer think of him and then am instantly angry and wanting to lash out. I still get angry but I make sure I use my cbt tools to get through that and deal. Anger is ok, hurt is ok, it is wrong that i don’t have my baby, it is unfair, but I don’t want to live my life thinking of Jack that way. I don’t have to hurt or hate others for that to be real.
So next time you see a friend or family member sad that they have lost a grandparent, aunt, dog etc. Be kind, be loving and remember it’s their emotion and it doesn’t take away from your pain.
– Allana x
So we did it! We got married!
It was a perfect day for us. We had so many amazing people help to ensure it was everything we hoped for and more. Especially our parents, my brother and his fiancé, the bridesmaids and best men and Karen and John. We couldn’t have done it without you guys in particular. There are many others who helped us too though!!
The main thing that we wanted was for Jack to be present for us. We didn’t necessarily want it to be obvious to everyone but just so we knew. We had butterflies all over the place, his name is on our wedding rings, a collection box for our NICU fund and flowers for him. We raised £320 to add to his fund ❤️
It was a beautiful day for us and everyone made it so special. We had been really focusing on the day and it was therapy for us to plan for it and keep busy. It wasn’t just a wedding but a renewal of us, a sign that we made it.
Annoyingly we had a very small amount of drama right at the end and a few people who let us down last minute (and didn’t let us know). Frustratingly these people haven’t apologised and didn’t contact us at all. However, it’s a simple way to handle these things, these people are no longer part of our lives. Nothing can ruin our day and spoil what we have. We are so strong and so very thankful for the vast majority who made it incredible.
Our next route is to keep moving forward and healing. It’s still hard and it’s always going to be at times, but we have each other and so many incredible friends and family around us. We will be ok.
– Allana X
It’s been a little while since i promoted this but we are still wanting to raise money to give back to Southampton Hospital and NICU. We will be splitting the money between 2 charities, these are:
Southampton Children’s Hospital Charity – https://schcharity.org.uk/
Holding Little Hands – https://www.facebook.com/HoldingLittleHands/
Both of these charities directly help to save the lives of children and baby’s everyday. They give money to all aspects of child and baby care. This means that the incredible people on the front line can continue to provide the outstanding care that they do. Not only that but it means they can keep giving the kind and respectful end of life care that baby’s like our Jack received. They are not only medical professionals but they are counsellors and some of the kindest people i have ever met.
Even the smallest amount will add up to something wonderful. Please share and donate if you haven’t already.
– Allana x
I try to live this everyday. By choosing to have a open and positive mindset I am able to grieve fully. I’m not rushing or dragging it out. My head, body and mind are just open to how I need to and do feel. I refuse to be consumed by grief or push it away. Neither are productive or things that I think Jack would want.
So we still haven’t had the post mortem results yet. It’s hard waiting as I want to shut that door of unknown. I know why he died but we need to know why he came early. It’s hard having that unanswered. I know we may not get one but at least I can deal with that once it’s done.
We had a lovely letter from Southampton Hospital thanking us for the donations from Jack’s funeral. In it they also included a pack of forget me nots. I’m not sure why but I have had a real connection with these flowers and see them everywhere. Seeing the packet brought tears to my eyes. Not sad ones but just raw emotion. It was unexpected and really touching.
We still have our JustGiving open but it’s not where I want it to be. I’ll have to start pushing it again. I really hope we can reach £5k by Jack’s 1st birthday in Neverland. That would be so wonderful.
Not long now until the wedding! 3 months and 2 days to go. ❤️
– Allana x
Time is moved by forward and life goes on. We have found a kind of new normal. I keep expecting to go back to how I was or wake up a new version of myself, but it’s a slow process. I’ll never be who I was before. I have lost a little more of my sparkle. I’m much less tolerant of people. I used to make an effort with everyone, even when they were pretty shit friends. I don’t now. I give exactly enough to most and more to those I love and value. I don’t think that’s a bad thing though. I just know that life is too short and precious to waste on any one or thing that doesn’t deserve or appreciate it. I have found that I do have a great deal of wonderful people around me. I’m very lucky in that respect.
We still haven’t had Jacks pm back yet. It’s hard. We cannot move forward without that. It’s like the last part of this. It’s keeping me in this limbo between the old me and the me I’m becoming. Fingers crossed that it will only be a few more weeks!
Taking each day as it comes. The sad times are starting to be outweighed by the good. Life is slowly moving on. I know we will find a new normal. One that is enriched by our memories of Jack.
– Allana x
So Mark and I have started finding a new normal in our lives. Each day has its ups and downs but we are moving further towards being more happy than sad. We have so many beautiful memories of our boy, they keep us going everyday.
We have received our photos of Jack that were very kindly taken by one of the nurses in NICU. They offer a free service for parents where she takes photos of angels after they have passed. This means that parents have some memories of them holding their babies outside of the incubator and medical equipment. I wont post many as some i don’t want to share, but i have a few that are really beautiful.
Please like their page on facebook. It’s such a beautiful thing to do for us parents of angels. Something so so beautiful. We have so few moments to hold our little ones, these pictures capture those moments forever.
– Allana x